Measuring Adult Task Readiness Study

The University of British Columbia is conducting a study to measure what it means to be an adult. We are particularly interested in the meaning of adulthood in individuals who are over 18 years of age and living with Down Syndrome. In order to define what it means to be an adult, we are looking for parents or caregivers of individuals with Down Syndrome as well as their adult children to complete a questionnaire.

The questionnaire for parents/caregivers will take approximately 10 minutes and will ask about some of your child’s accomplishments. After completing the questionnaire, parents/caregivers who are willing to pass on the questionnaire to their children living with Down Syndrome will be provided with a link to the questionnaire. The questionnaire for participants with Down Syndrome will take 30 minutes to 1 hour to complete and will ask about the individual’s behavior and their reactions to hypothetical situations. If both parent/caregiver and child complete the survey, a $10 Tim Horton’s gift certificate will be sent to the child with Down Syndrome.

If you are interested in taking part in this study, please click on the link below:

If you have any questions about the study, please contact Maya Pilin (Co-Investigator) at or Dr. Brian O’Connor (Principal Investigator) at